Paul, D. Henskens, F.A. Loughland C.M., Bridge, J., McCabe K., Carr, V.J., Catts, S.V., Jablensky, A., Michie, P.T., Mowry, B.J., Pantelis, C., Schall, U. and Scott, R.J., “IT Development and Management of a Live e-Research System: Experiences with the Australian Schizophrenia Research Bank”, The 5th International Conference on Health Informatics (HealthInf2012), Vilamoura, Portugal, INSTICC, pp. 125-130, 2012.
The Australian Schizophrenia Research Bank (ASRB) is a nationwide eResearch project that aims to facilitate scientific research into one of the most perplexing and challenging mental disorders facing researchers today. The system is accessed through a Web portal and, subject to ethics approvals, allows researchers access to subsets of the clinical, neuropsychological, and genetic data collected by the project. This paper describes the day-to-day experiences in the on-going development and management of the ASRB IT systems, including current practices, lessons learned, and areas where improvement is required.