IT Development and Management of a Live e-Research System: Experiences with the Australian Schizophrenia Research Bank
Paul, D. Henskens, F.A. Loughland C.M., Bridge, J., McCabe K., Carr, V.J., Catts, S.V., Jablensky, A., Michie, P.T., Mowry, B.J., Pantelis, C., Schall, U. and Scott, R.J., “IT Development and Management of a Live e-Research System: Experiences with the Australian Schizophrenia Research Bank”, The 5th International Conference on Health Informatics (HealthInf2012), Vilamoura, Portugal, INSTICC, pp. 125-130, 2012.
Abstract
The Australian Schizophrenia Research Bank (ASRB) is a nationwide eResearch project that aims to facilitate scientific research into one of the most perplexing and challenging mental disorders facing researchers today. The system is accessed through a Web portal and, subject to ethics approvals, allows researchers access to subsets of the clinical, neuropsychological, and genetic data collected by the project. This paper describes the day-to-day experiences in the on-going development and management of the ASRB IT systems, including current practices, lessons learned, and areas where improvement is required.
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